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February 27, 2013

A New Issue of The New England Journal of Medicine is Now Available

A new issue of the New England Journal of Medicine (February 28, 2013) is now available online and in print.

There is an extended debate on Open Access, Patient Privacy, and the future of medical publishing including:

February 26, 2013

Event: Research Ethics: Current Challenges in Preclinical, Clinical, and Public Health Research

The German Ministry of Education and Research
Research Ethics: Current Challenges in Preclinical, Clinical and Public Health Research
An international conference for young scholars
August 26-30, 2013
Hannover Medical School
Germany

For more information: Conference Brochure (English)

February 22, 2013

King’s College London asks students to take part in cocaine study

A top university has asked its students to take part in a cocaine study - and they’ll get paid to do so. (Huffington Post)

February 8, 2013

The dialogue continues

The nanotoxicology community has numerous ideas and initiatives for improving the quality of published papers. (Nature Nanotechnology)

February 4, 2013

Genetics-poverty link questioned

Harvard geneticists and anthropologists challenge the work of two economists who say there’s a link between genetic diversity and wealth. (The Scientist)

January 24, 2013

Experts propose overhaul of ethics oversight of research

The longstanding ethical framework for protecting human volunteers in medical research needs to be replaced because it is outdated and can impede efforts to improve health care quality, assert leaders in bioethics, medicine, and health policy in two companion articles in a Hastings Center Report special report, “Ethical Oversight of Learning Health Care Systems.” One of the authors calling for a new approach is the main architect of the current ethical framework. (Eurekalert)

Study finds older male scientists likelier to commit research fraud

Male and older scientists are more likely than female and younger colleagues to commit research misconduct, according to a new study. (Health News)

January 21, 2013

FDA and sub-Saharan partners protecting public health

FDA and its partners in Sub-Saharan Africa have made great strides in improving the oversight of the clinical trials of medical products in development—an important advance in protecting public health in both the U.S. and Africa. (FDA.gov)

January 15, 2013

Tom Beauchamp, Ph.D. to address the Commission

Tom Beauchamp, Ph.D., an invited speaker at the 12th meeting of the Presidential Commission for the Study of Bioethical Issues, has been a Senior Research Scholar at the Kennedy Institute of Ethics and a Professor of Philosophy at Georgetown University for more than 30 years. (Bioethics.gov)

January 14, 2013

Experts aim to redefine healthcare and research ethics

In what they acknowledge as a seismic shift in the ethical foundation of medical research, practice and policy, a prominent group of interdisciplinary healthcare experts, led by bioethicists at Johns Hopkins, rejects an ethical paradigm that has guided the American system since the 1970s and calls for morally obligatory participation in a “learning healthcare system” more in step with the digital age. (Science Daily)

January 9, 2013

‘Rehab’ helps errant researchers return to the lab

As cases of misconduct rise, ethicists test an approach for reforming offenders. (Nature)

January 7, 2013

Patients seek stem-cell ‘miracle,’ but scientists warn of dangers

But there are hidden dangers to today’s stem cell treatments, both in the U.S. and offshore, scientists said at the recent World Stem Cell Summit in West Palm Beach. They pointed to reports of deaths, tumors, lumbar punctures and other potential harm, as well as vulnerable people being conned out of thousands of dollars. (Sun Sentinel)

December 20, 2012

Gene therapy extends life of 13 children with deadly disorder

Children born with a rare, genetic brain disorder that causes severe atrophy and often leads to death within three years are alive seven to 10 years after being treated with an experimental gene therapy, a study showed. (Seattle Times)

December 17, 2012

First road map of human sex-cell development

The causes of infertility, which affects around 10% of couples, are often unknown, but may in some cases result from the body’s inability to produce viable gametes — also known as sperm and egg cells. The first study of the development of such ‘germ cells’ from humans could help scientists to learn how to create them in the laboratory instead. (Nature)

December 13, 2012

Operation Delierium

Decades after a risky Cold War experiment, a scientist lives with secrets. (The New Yorker)

December 7, 2012

Survivor of Nazi ‘twin experiments’ talks to doctors about human subject research

Eva Kor will never forget the day her childhood ended. The images of that day, and the weeks after, are burned into her memory, as brutally permanent as the tattoo on her left forearm. (Science Daily)

December 3, 2012

Insider trading suspect was model ethics student

Mathew Martoma knew from an early age he wanted to blend his interests in health care, business and law into a career, and he excelled as a bioethics student. Yet the 38-year-old Florida man now finds himself embroiled in what could prove one of the biggest ethical lapses in Wall Street’s history. (Associated Press)

November 9, 2012

Leftover newborn blood samples need better regulation, ethicists say

The tiny spots of blood left after routine tests on newborns could provide valuable information for researchers, but clear policies that govern their use are needed so that the samples are not destroyed or otherwise lost entirely, experts say. (Fox News)

Girl dies as Pluristem sells on gains with miracle cells

After the stock soared on the positive news, two top executives profited by selling shares at the highest price in more than four years as part of a pre-determined program. When the first of those patients, a 7-year-old girl with a bone- marrow disease, died four months after the company said her life had been saved, Pluristem was silent. The company raised $34 million selling shares a week later. (Businessweek)

November 8, 2012

APHA executive director to address commission

Our nation’s public health system plays a critical role in helping prevent, respond to and recover from public health emergencies, such as infectious disease outbreaks and terrorist attacks. Dr. Georges Benjamin will speak to the Presidential Commission for the Study of Bioethical Issues at its eleventh public meeting being held today and tomorrow in Chicago where the Commission will continue its analysis of the ethical issues related to conducting clinical trials of medical countermeasures for children. (bioethics.gov)

October 24, 2012

Genetics may help explain placebo effect, researchers say

A patient’s genetic makeup may explain the “placebo effect,” in which people perceive that a fake treatment makes them feel better, according to a study that may help researchers design better clinical trials. (Businessweek)

 

The Bioethics Poll
Should individuals and/or institutions be allowed to patent human genes?
Yes
Yes, with some qualifications
No
Undecided


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Which area of research should more money be invested in:
Animal-Human Hybrids
Gene Therapy
Reproductive Technology
Stem Cell Research
"Therapeutic" Cloning
None of the above


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