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SUMMARY:ELSI Friday Forum: Building Infrastructures to Enhance Community Engagement Work
DESCRIPTION:This ELSI Friday Forum is co-hosted with The Broad Institute. Community engagement is increasingly seen as a necessary component of genetic and genomic research. One major rationale for community engaged genetic research is to assure that benefits of research are aligned with community needs and goals. Assuring broad benefits also requires broad representation in genetic and genomic research participant populations. Organizations such as the American Society for Human Genetics have put forward guidance to advance community-engaged research\, which was aimed at the scientific community. However\, there are structural barriers to the advancement of community-engaged research that may require the action of institutions such as scientific journals\, research funders\, and academic research organizations. This session will address ways that structural and systemic factors can lower barriers to effective community engagement in genetic and genomic research. \nPanelists: Ishita Das\, PhD\, PMP; Alycia Halladay\, PhD; and Celia van der Merwe\, PhD. \nModerator: Heini Natri\, PhD. \n  \nContact Email: info@elsihub.org \nRegistration Link: https://us06web.zoom.us/webinar/register/WN_dw1MMk8NSeiX08gNIMYRsA#/registration
URL:https://bioethics.com/event/elsi-friday-forum-building-infrastructures-to-enhance-community-engagement-work
LOCATION:Online
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