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SUMMARY:ELSI Friday Forum: "Knowing or Not Knowing: The Ethics of Returning Genetic Risk Information for Alzheimer's Disease"
DESCRIPTION:Abstract: The return of genetic and biomarker information in Alzheimer’s disease (AD) research has emerged as a pressing ethical question as disease-modifying treatments become available and expectations around disclosure shift. This ELSI Friday Forum brings together two leading ELSI researchers whose work interrogates these tensions. \nJessica Mozersky\, PhD (Washington University in St. Louis) will draw on findings from her recent cohort study evaluating who declines to learn AD biomarker results and will discuss the ethical significance of respecting the “right not to know.” Ruth Ottman\, PhD (Columbia University) will present findings from her longitudinal community-based study of Latinos in northern Manhattan that examines the psychosocial\, behavioral\, and cognitive impacts of learning late-onset Alzheimer’s disease risk based on APOE genotype disclosure versus nondisclosure. Moderated by Emily Largent\, JD\, PhD\, RN (University of Pennsylvania)\, this session will explore the ethical\, cultural\, and policy implications of returning AD genetic risk information.
URL:https://bioethics.com/event/elsi-friday-forum-knowing-or-not-knowing-the-ethics-of-returning-genetic-risk-information-for-alzheimers-disease
LOCATION:Online
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SUMMARY:Adoption on the Frontlines of Reproductive Justice
DESCRIPTION:In the intense US debate over access to abortion\, opponents to access offer adoption as an alternative. In this seminar\, an expert panel will delve into the legal and ethical issues in the American approach to adoption as an abortion alternative and the experiences women who have relinquished their children\, framing adoption as an issue on the leading edge of reproductive justice. Support provided by the Oswald DeN. Cammann Fund at Harvard University. \nPresenters: \n\nMalinda Seymore\, JD\, Professor of Law\, Texas A&M University School of Law\nGretchen Sisson\, PhD\, Sociologist\, Advancing New Standards in Reproductive Health\, University of California San Francisco\n\nModerator: \n\nBarbara Wilkinson\, MD\, MA\, Instructor\, Harvard Medical School; Brigham and Women’s Hospital\n\nRegister here to receive the Zoom link and call-in details in your automated confirmation email. \n\nThe seminar recording will be uploaded to our YouTube channel in the weeks following the event date\, pending no technical issues. Registrants will receive a follow-up email containing the recording link when it is ready.
URL:https://bioethics.com/event/adoption-on-the-frontlines-of-reproductive-justice
LOCATION:Online
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