If We Don’t Own Our Genes, What Protects Study Subjects in Genetic Research?
March 29, 2016
(Medical Xpress) – At the forum, President Obama remarked “I would like to think that if somebody does a test on me or my genes, that that’s mine.” Lots of people would make that same assumption – it seems sensible that we would each “own” our genetic information. But the legal reality is quite different. And that could turn out to be a problem, because research projects like the Precision Medicine Initiative rely on research participants trusting that their information is protected once they agree to share it.