June 1, 2026
(NYT) – Yet legalizing medical aid in dying, or MAID, has been and remains a long, contentious process. Catholic leadership and many disability organizations staunchly oppose it. (Pope Leo XIV personally asked Illinois Gov. JB Pritzker not to sign the … Read More
May 19, 2026
(WSJ) – Special accommodations for irritable bowel syndrome? Families are getting creative, and spending big, in pursuit of an edge. Test time has emerged as a fierce battleground among parents of high-schoolers. Students with diagnosed disabilities or medical issues for … Read More
May 15, 2026
(NBC News) – A sweeping federal spending package signed by President Donald Trump last year — his “big, beautiful bill” — is expected to slash Medicaid funding by about $1 trillion over the coming decade, just as many states are … Read More
April 28, 2026
(ProPublica) – A rule change pushed by White House officials would slash benefits or end support for as many as 400,000 Supplemental Security Income recipients with Down syndrome, dementia and other disabilities whose parents or relatives receive SNAP benefits. For … Read More
April 17, 2026
(Reuters via MSN) – Researchers have developed a modified version of the CRISPR gene-editing tool that in early laboratory experiments suggests it may have the potential to “silence” the extra chromosome that causes Down syndrome. People with Down syndrome are … Read More
March 27, 2026
(Comment) – Reflections from a Canadian public policy researcher. Tracy’s story has reverberated through the years. Amid news in 2018 that Robert Latimer was applying for a pardon or a new trial, my friend Taylor Hyatt, who lives with cerebral … Read More
March 20, 2026
(Compact Magazine) – When people see a wheelchair user like me, they evidently assume my disability must be so hard to survive, so painful, and so isolating that even just venturing beyond my front door is an achievement worthy of … Read More
March 18, 2026
(NPR) – The treatment in question is leucovorin, a derivative of vitamin B9 — also called folinic acid — that is commonly used during cancer treatment. Federal officials said it could help treat a rare brain condition called cerebral folate … Read More
March 13, 2026
(Plough) – As laws permitting medically assisted death advance, how will we learn to accept diminishment rather than kill ourselves? I share this experience with Jens because I have been mulling over a parenting challenge, and I think the way … Read More
March 3, 2026
(NYTs) – One of Us, run by Denmark’s health ministry, works with people with mental health conditions to share their stories in schools, hospitals and police stations, helping turn fear into understanding. For years after he was diagnosed in 2009, … Read More
January 29, 2026
(IB Times) – Elon Musk has unveiled new developments at Neuralink, outlining a more powerful brain implant and signalling that a vision-restoring device is nearing human trials. The announcement was made during recent public discussions and amplified across X, as … Read More
January 23, 2026
(Plough) – Our son Yusang has Down syndrome. He saved another child’s life. My wife and I had just learned that a couple from our church were wrestling with grief and confusion, so that cold Sunday evening, I set out … Read More
January 13, 2026
(AP) – Mattel Inc. is introducing an autistic Barbie on Monday as the newest member of its line intended to celebrate diversity, joining a collection that already includes Barbies with Down syndrome, a blind Barbie, a Barbie and a Ken … Read More
December 30, 2025
(The Guardian) – Young adults and teenagers prevalent in ‘skyrocketing’ admissions linked to class B drug, say doctors in northern England Few places have felt the effects of that increase more than urology departments. Chronic ketamine use can cause irreversible … Read More
December 30, 2025
(The New Yorker) – Proven methods for teaching the readers who struggle most have been known for decades. Why do we often fail to use them? What’s more, the main principles that inform those methods have been shown to underlie … Read More
December 23, 2025
(KFF Health News) – Other families around the country have also recently had their access to the therapy challenged as state officials make deep cuts to Medicaid — the public health insurance that covers people with low incomes and disabilities. … Read More
December 8, 2025
(WSJ) – Medicaid pays healthcare providers big bucks to diagnose and treat children with autism—sometimes tens of thousands of dollars a month for a single child. Yet states rarely verify that kids who are diagnosed actually meet the medical criteria … Read More
December 3, 2025
(KFF Health News) – Spinal cord injuries, strokes, chronic obstructive pulmonary disease, and neurological diseases such as multiple sclerosis have left tens of thousands of Americans permanently dependent on ventilators. The barriers these patients face offer a stark example of … Read More
December 3, 2025
Bioethics (vol. 39, no. 9, 2025) is available online by subscription only. Articles include:
November 24, 2025
Journal of Medical Humanities (vol. 46, no 3, 2025) is available online by subscription only. Articles include:
November 19, 2025
(IEEE Spectrum) – The tech is proving its worth, but lower costs are elusive When I asked Jeff Erenstone, a prosthetist for over two decades and founder of prosthetic limb non-profit Operation Namaste, why 3D printed designs hadn’t lowered costs, … Read More
November 18, 2025
(WSJ) – Many doctors listed in insurer networks treat few or no Medicaid recipients, leaving patients with long waits; ‘Don’t get sick.’ Private Medicaid insurers dominate the government healthcare program that covers more than 70 million low-income and disabled Americans. … Read More
November 11, 2025
(New York Times) – Diagnosed with A.L.S., they traded stories, drank tequila and made grim jokes at a unique annual gathering on Cape Cod. Ms. Brous, 38, who lives in Hico, Texas, was one of dozens of women who converged … Read More
November 5, 2025
Hastings Center Report (vol. 55, Issue S1, 2025) is available online by subscription only. Articles include:
October 16, 2025
(Wired) – An estimated 100 million people live with facial differences. As face recognition tech becomes widespread, some say they’re getting blocked from accessing essential systems and services. Around half a dozen people living with a variety of facial differences—from … Read More
