Passing My Disability to My Children

September 9, 2016

(New York Times) – When I found out Walker had XLH, I mourned briefly — mostly for the image I’d had of a tall, gangly teenager, the kind I had never been. But I never once regretted him or his XLH, and I certainly never imagined other people thinking about it or judging me for having had a child with a disability. Her words irked me, but eventually I understood that for an abled person — a person who considers herself “normal” — it is probably difficult to imagine taking the risk of passing on what is considered by most to be a fairly significant disability.