‘Biorights’ Rise: Donors Demand Control of Their Samples

October 10, 2016

(Boston Globe) – No longer are patients or donors like O’Connor remaining passive when it comes to providing blood, saliva, or tissue samples used for research — samples that are used to help researchers find treatments that can earn drug makers millions, or even billions, of dollars. In what some are calling the “biorights” movement, patients are refusing to provide specimens unless they are compensated; are promised that useful medical information will be returned to them; or are granted some control over how their biological samples will be studied.