Patient Advocacy Groups Have Close Ties with Industry, But Some Lack Transparency

March 1, 2017

(STAT News) – Patient advocacy organizations carry out important work like funding research and lobbying on behalf of people with a certain health condition — but they also can be less than fully transparent, with some failing to publicly list their sources of funding, a new study finds. Why it matters: While drug and device companies are required by federal law to disclose all payments they make to doctors and teaching hospitals, they don’t need to tell anyone how much money they give to patient advocacy groups.