Consumer Genetic Testing Companies Team Up to Lobby on Privacy Policy

June 25, 2019

(STAT News) – Anticipating more federal scrutiny of genetic privacy policies, three leading consumer genetic companies have formed an advocacy group to defend their efforts to safeguard information about their customers’ DNA and separate themselves from perceived bad actors. The Coalition for Genetic Data Protection — launched by Ancestry, 23andMe, and Helix — will provide the companies a “collective voice” in talking to lawmakers, said its executive director, Steve Haro, a principal at Mehlman Castagnetti Rosen & Thomas. The group is advocating for a comprehensive genetic data privacy bill that aligns with the policies the companies follow and have espoused, he said.

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