I Gave My DNA Away. Can I Get It Back?
August 5, 2019
(BBC) – But Tim Caulfield, research director at the health law institute at the University of Alberta, is not sure that people realise what they are signing up for when they answer the lengthy questionnaires about their health and heritage. “People need to look carefully at privacy statements because often these firms are partnering with the pharmaceutical industry and people should be aware that is happening,” he told the BBC. And while most of the firms – including 23andMe – operate on the basis that users can withdraw consent to use their genetic information at any time, it can be more complicated than that.