How Should Scientists’ Access to Health Databanks Be Managed?
September 6, 2019
(NPR) – More than a million Americans have donated genetic information and medical data for research projects. But how that information gets used varies a lot, depending on the philosophy of the organizations that have gathered the data. Some hold the data close, while others are working to make the data as widely available to as many researchers as possible — figuring science will progress faster that way. But scientific openness can be constrained b y both practical and commercial considerations. Three major projects in the United States illustrate these differing philosophies.