Down Syndrome Families’ Fight for Access to Alzheimer’s Trials, Treatments

October 11, 2023

(Reuters) – As a child, Lianor lived for a time in Santo Amaro de Oeiras, Portugal, near her aunt Teresa who had Down syndrome, which causes intellectual disability. Had Lianor, who is 47, stayed in Portugal, she would have witnessed her aunt decline and then die at age 60 of Alzheimer’s – the most common cause of death for people with Down syndrome. Now, Lianor’s husband and Oskar’s father, former biotech executive Hampus Hillerstrom, 46, is leading an effort to gain parity with neurotypical adults for his son and others with Down syndrome. (Read More)