February 26, 2024
(Chicago Sun Times) – Right now, those of us with disabilities are facing a significant battle: the defeat of a growing movement that wants to make physician-assisted suicide legal in Illinois. This fight is one with the goal to, literally, … Read More
February 14, 2024
(PBS) – Since Roe v. Wade was overturned, many health care providers say an increasing number of patients are deciding the fate of their pregnancies on whatever information they can gather before state abortion bans kick in. But early ultrasounds … Read More
February 13, 2024
(New York Times) – Brooke Ellison, who after being paralyzed from the neck down by a childhood car accident went on to graduate from Harvard and became a professor and a devoted disability rights advocate, died on Sunday in Stony … Read More
February 9, 2024
(ABC News) – Ecuador’s high court on Wednesday decriminalized euthanasia and ordered lawmakers and health officials to draft rules and regulations for the procedure. The decision of Ecuador’s Constitutional Court came in response to a lawsuit from a terminally ill … Read More
February 6, 2024
(NPR) – The U.S. Census Bureau is no longer moving forward with a controversial proposal that could have shrunk a key estimated rate of disability in the United States by about 40%, the bureau’s director said Tuesday in a blog … Read More
February 2, 2024
(The Telegraph via MSN) – Last Saturday, an autistic Dutch woman died at home by assisted suicide, with her parents and best friend by her side. Her passing is significant to those far beyond her circle or who followed her … Read More
February 1, 2024
(TIME) – Receiving an implant comes with risks. Some are typical surgical risks—such as excessive bleeding or infection. Others are unique. For example, the brain simulation that BCIs entail can triggerepileptiform activity, a precursor for epilepsy, or epileptic attacks. (Neuralink … Read More
January 29, 2024
(Axios) – Some of America’s most challenging behavioral health care problems include a key disadvantage: They’re not very profitable to treat. Why it matters: Serious mental illness and addiction have a profound effect on families and communities, but their complexity … Read More
January 29, 2024
(New York Times) – Andrey Shevelyov would rather live on the street than take antipsychotic medication. Should it be his decision to make? As affordable apartments all but vanished in American cities, a whole tier of people with disabling mental … Read More
January 23, 2024
(New York Times) – Aissam Dam, an 11-year-old boy, grew up in a world of profound silence. He was born deaf and had never heard anything. While living in a poor community in Morocco, he expressed himself with a sign … Read More
January 22, 2024
(Vox) – When I started getting videos from seriously ill creators on my TikTok For You page, I let myself briefly think that I’d found something Sontag was looking for. If anything can be content, then maybe turning illness into … Read More
January 16, 2024
(NPR) – Actor Christina Applegate has stayed mostly out of the public eye since she announced she was diagnosed with multiple sclerosis in 2021. But she came out at Monday night’s Emmys to present the first award, and was greeted … Read More
January 12, 2024
(Axios) – AI is fueling a new generation of technologies to help people who live with disabilities. Why it matters: The right technologies can be life-changing for people living with a disability and will be essential in supporting our aging … Read More
January 12, 2024
(CBS News) – California and 17 other states don’t require private insurance plans to cover hearing aids for kids, so many don’t. But about two or three of every 1,000 babies in the U.S. are born with detectable hearing loss … Read More
January 11, 2024
(STAT News) – The abrupt transition from school-age support to limited adult services is aptly termed “the cliff.” I often wonder: What will happen to my daughter when I am too old to advocate for her? The good news for … Read More
January 8, 2024
(TechCrunch) – In the case of people with Parkinson’s disease, “freezing” is a frequent issue that impacts the ability to walk, while increasing the likelihood of falls. The symptom causes people to lose their footing while walking, shortening steps before … Read More
January 3, 2024
(New York Magazine) – It was my bad luck, the attending doctor said at my bedside, to be an interesting case. Our meetings had a tone of rueful amusement. Yes, I was in pain and reeking from infrequent showering, but … Read More
December 22, 2023
(Associated Press) – Russia’s war on Ukraine has created a massive need for prosthetic limbs. An estimated 20,000 Ukrainians have had amputations since the war started in February 2022, many of them soldiers who lost arms or legs due to … Read More
December 18, 2023
December 13, 2023
(STAT News) – Once cancer is diagnosed, perhaps at a later stage if routine screening is delayed or overlooked, a patient who uses a wheelchair may confront another barrier: Outdated decision trees designed for treatment regimens that depend on a … Read More
December 12, 2023
(KFF Health News) – Myrna Peterson predicts self-driving vehicles will be a ticket out of isolation and loneliness for people like her, who live outside big cities and have disabilities that prevent them from driving. Peterson, who has quadriplegia, is … Read More
December 12, 2023
(NPR) – Draped in a kachhad, a traditional Nepalese cotton garment wrapped around the waist, 28-year-old Umesh Balal walked into his meetings at the COP28 conference in Dubai with a sense of determination. He is there to advocate for inclusion … Read More
December 11, 2023
(STAT News) – Though there are 7.4 million Americans with intellectual and developmental disabilities, physicians are often uncomfortable treating them. In a recent survey of 714 Massachusetts physicians across various specialties, only 40% reported being very confident treating physically or … Read More
December 7, 2023
December 6, 2023
(Wall Street Journal) – Crowley will take on his biggest role yet in March, when he becomes chief executive officer of Biotechnology Innovation Organization, a powerful trade group whose members are mostly small health-focused companies. Crowley will succeed Rachel King, … Read More
