The Cost of Not Knowing a Huntington’s Diagnosis

March 19, 2019

(The Atlantic) – When Jennifer Leyton was going through IVF, her doctors would tell her very little. They turned off the ultrasound screen facing her so she could not count the number of eggs retrieved. They kept secret the number of fertilized embryos. They did not even say how many they transferred to her womb. This secrecy might have been maddening for many IVF patients, but for Leyton, it was her choice. She chose secrecy because she wanted to avoid finding out whether she had inherited a mutation for Huntington’s.

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