With a $2.1 Million Cure Their Only Hope, Parents Plead for Help Online

April 6, 2022

(New York Times) – In India, and in many of the world’s poorer countries, the pharmaceutical industry’s latest advances for rare diseases are often agonizingly out of reach, impossible for almost all but the wealthiest families to afford and not covered by health insurance. In desperation — and encouraged by the occasional success story — families are turning to social media to raise funds. (Read More)