The Ethical Minefield of Testing Infants for Incurable Diseases
June 9, 2025

(New York Times) – Screening can now determine their risk for an ever-growing list of conditions — including ones we can’t do much about.
Today, that panel checks for unusual bio-markers that may indicate a rare but treatable disease like sickle cell anemia or cystic fibrosis. But what if that same dried blood spot could tell you about the baby’s risk of developing certain conditions later in life — some with no method of prevention or cure?
What if that heel prick could tell you that the baby was almost certainly going to be diagnosed with autism by the time they turned 5? Or that the child would be more likely to develop breast cancer as an adult?
Would you want to know? Would she? (Read More)