December 20, 2018
(Genetic Engineering & Biotechnology News) – While Leber congenital amaurosis (LCA) may not have the name recognition of congenital disorders, it does represent one of the most common causes of blindness in children. Now, investigators at the Scheie Eye Institute … Read More
December 18, 2018
Ethics, Medicine, and Public Health (vol. 5, no. 1, 2018) is available online by subscription only. Articles include: “‘My Blessed Child Does Not Need to Know about That!’: How Should Sexual Health Educators Confront the Challenge of Religious Pluralism in … Read More
December 14, 2018
(Knowable Magazine) – Donoghue himself went on to further develop the system to allow people to open and close a robotic hand, and to reach, grasp and drink from a bottle by using a multijointed robotic arm. Last year, he … Read More
November 27, 2018
(Scientific American) – Decades later, both scientists are still in the minority: According to the latest estimates, there are more than 1 million autistic children in the United States but only about 8,300 child psychiatrists, 1,500 child neurologists and 1,000 … Read More
November 26, 2018
(Daily Mail) – Three doctors who certified a woman as autistic so that she could die by euthanasia are set to go on trial in Belgium. The sisters of Tine Nys told investigators that her suffering was caused instead by … Read More
November 19, 2018
(Medical Xpress) – Recent announcements by two biotechnology companies have stoked fears that designer babies could soon be an option for those who can afford to pick and choose which features they want for their offspring. The companies, MyOme and … Read More
November 16, 2018
(New Scientist) – THE prospect of creating intelligent designer babies has been the subject of ethical debate for decades, but we have lacked the ability to actually do it. That may now change, thanks to a new method of testing … Read More
November 12, 2018
(Al Jazeera) – Japan has more than seven million disabled people. This year, the government increased employment quotas for disabled people. Employees with a disability must now make up 2.5 percent of the public sector workforce and 2.2 percent in … Read More
October 31, 2018
Journal for the Scientific Study of Religion (vol. 57, no. 2, 2018) is available online by subscription only. Articles include: “Meaning in Life Moderates the Relationship Between Sacred Loss/Desecration and Health” by Neal Krause, Kenneth I. Pargament, and Gail Ironson … Read More
October 30, 2018
Journal of Intellectual Disability Research (vol. 62, no. 9, 2018) is available online by subscription only. Articles include: “Attitudes of Health Care Professionals toward People with Intellectual Disability: A Comparison with the General Population” by D. Morin, P. Valois, A. … Read More
October 30, 2018
Journal of Applied Research in Intellectual Disabilities (vol. 31, no. 5, 2018) is available online by subscription only. Articles include: “Medical Certificates of Cause of Death for People with Intellectual Disabilities: A Systematic Literature Review” by Fred Dunwoodie Stirton and … Read More
October 26, 2018
(USA Today) – The high-profile legal battles around celebrities incapacitated by dementia are drawing attention to a phenomenon dividing many more families across the country. When ailing adults can no longer manage their own affairs, responsibility shifts to family members … Read More
October 25, 2018
(STAT News) – Studies show as many as half of all people with epilepsy have confronted stigma based on their condition. In a national survey, many Americans said they were frightened to be alone with seizure-prone people, who they believe … Read More
October 22, 2018
(MIT Technology Review) – All embryo testing does fit the “designer” label in one important way, however: it is not available to everybody. Matthew and Olivia opted in to what is a quiet but significant trend. Although the number of … Read More
October 17, 2018
(The Atlantic) – A new video from Jill Rosenbaum at Retro Report, in association with American Experience, premiering on The Atlantic today, depicts some major bioethics quandaries that have resulted from advances in genetic screening technology. With prenatal and carrier … Read More
October 8, 2018
(STAT News) – Nearly 40 years after surgeons first operated on fetuses to cure devastating abnormalities, researchers have taken the first step toward curing genetic disease before birth via genome editing: scientists reported on Monday that they used the genome … Read More
October 5, 2018
(PC Magazine) – In Dr. Lenzi’s lab, McMorris is participating in bio-medical clinical trials of technology intended to revolutionize life for people who require artificial limbs. Usually, McMorris wears a passive prosthetic below his right knee, but in the lab, … Read More
October 2, 2018
(ABC News) – The Supreme Court appeared willing Tuesday to extend protection from capital punishment to people with dementia who can’t recall their crime or understand the circumstances of their execution. The eight justices heard arguments in the case of … Read More
October 1, 2018
(Scientific American) – Kerns and a few other researchers are trying to get a better understanding of the interplay between autism and PTSD, which they hope will inform and shape treatment for young people like Gabriel. The more they dig … Read More
October 1, 2018
(BBC) – Both boys are growing up with congenital Zika syndrome (CZS), a set of physical impairments caused when their mothers were infected with the Zika virus while they were pregnant. In Brazil, more than 3,000 children were born with … Read More
September 27, 2018
(BBC) – Ms Njoki and Ms Kipchumba are not alone. A new study in Kenya has found that 45% of mothers interviewed by a leading charity faced pressure to kill their babies born with disabilities. The survey found that the … Read More
September 6, 2018
(UPI) – A study of the efficacy of the blood test, which was published Thursday in Biological Psychiatry, was able to detect about 16.7 percent of children with autism spectrum disorder. Autism, which develops in childhood and continues through adulthood, … Read More
August 29, 2018
(Science) – For many children with autism spectrum disorder (ASD), recognizing and responding to eye contact, body language, and tone of voice is a major challenge. Improving those social skills can take lots of work—putting a strain on caregivers with … Read More
August 29, 2018
(The Atlantic) – Jeff Johnson is 40 years old, and for all 40 of those years, he has been living with hemophilia. The genetic disorder prevents blood from properly clotting, which, if untreated, can cause uncontrollable bleeding. Yet, Johnson says, … Read More
August 27, 2018
(Knowable Magazine) – The issue, says Matt Mason, a roboticist at Carnegie Mellon University, is that for all of robots’ existing abilities to move around the world autonomously, they can’t yet physically interact with objects in a meaningful way once … Read More