June 20, 2019
Disability Ethics
June 17, 2019
A New Edition of Journal of Genetic Counseling Is Now Available
June 14, 2019
What Medicine Can Learn from Doctors and Researchers with Disabilities
May 28, 2019
‘She’s Wiggling Her Toes’: New Fetal Surgery for Spina Bifida May Be Safer for Both Baby and Mom
May 27, 2019
Years After My Son Died in NHS Care, State-Sanctioned Torture Continues
May 24, 2019
Disabled Woman Who Gave Birth at Care Facility May Have Been Impregnated Before
April 17, 2019
As Calls Mount to Ban Embryo Editing with CRISPR, Families Hit by Inherited Diseases Say, Not So Fast
(STAT News) – Watching all this have been people with a special interest in embryo editing: those who carry genetic mutations that can cause severe disease. They wonder whether experts who denounce embryo editing have any understanding of what millions … Read More
April 11, 2019
Genetic Testing for Autism, Explained
(Spectrum) – Autism is primarily a genetic condition: Most of the risk for autism comes from genes. Mutations in more than 100 genes are known to lead to the condition. There are four types of tests that can detect these … Read More
April 9, 2019
Tackling the Burden and Shame of Hearing Loss
(Undark) – Hearing loss, they say, is not just a functional disability affecting a subset of aging adults. With population growth and a boom in the global elderly population, the World Health Organization (WHO) now estimates that by 2050, more … Read More
March 26, 2019
A New Edition of Maternal and Child Health Journal Is Now Available
Maternal and Child Health Journal (vol. 22, no. 12, 2018) is available online by subscription only. Articles include: “Progress Toward Eliminating Mother to Child Transmission of HIV in Kenya: Review of Treatment Guidelines Uptake and Pediatric Transmission Between 2013 and … Read More
March 26, 2019
A New Edition of Occupational Medicine Is Now Available
Occupational Medicine (vol. 68, no. 8, 2018) is available online by subscription only. Articles include: “Severe Learning Disabilities and Consent” by Anli Yue Zhou, Jacques Tamin, Susan Turner, and Donald Menzies “Fatigue Risk Management Systems Needed in Healthcare” by Peter … Read More
March 26, 2019
A New Edition of Journal of Applied Philosophy Is Now Available
Journal of Applied Philosophy (vol. 35, no. 4, 2018) is available online by subscription only. Articles include: “The Taste Question in Animal Ethics” by Jean Kazez “No Such Thing as Killer Robots” by Michael Robillard “Ageing and Terminal Illness: Problems … Read More
March 19, 2019
Landmark Ruling Sets Precedent for Parity Coverage of Mental Health and Addiction Treatment
(STAT News) – For far too long, health insurers have been treating people with mental health and substance use disorders like second-class citizens. A federal court recently ruled that this must stop. Employers and regulators, take note. The ruling came … Read More
March 13, 2019
Bill Passes to Ban Abortions Based on Gender, Disability
(ABC News) – Kentucky’s Republican-led legislature on Wednesday passed its latest measure to put more restrictions on abortion, setting up another legal fight with abortion-rights defenders. The legislation would ban abortion for women seeking to end their pregnancies because of … Read More
March 11, 2019
Does the Rhetoric of Consumer Genetics Aim to Eliminate Disability Without Mentioning It?
(Science) – In 2011, poet and writer George Estreich wrote about the impact of biotechnology on family life in his first book, The Shape of the Eye. The memoir centers on how his family’s life was changed, and enriched, by … Read More
March 8, 2019
Pain & Profit (Multi-part series)
(Dallas Morning News) – Texas pays Superior and other companies billions of dollars every year to arrange care for tens of thousands of kids like D’ashon: foster children, disabled children, chronically sick children. The companies promise to improve the lives … Read More
March 4, 2019
Man with Motor Neuron Disease Dies After Removing Mask
(BBC) – John King, 77, from Worcestershire, died on Thursday after removing a mask he relied on for air to stay alive. After his diagnosis 18 months ago, the businessman had been fed through a tube and needed constant care. … Read More
February 20, 2019
The Coming Care Crisis as Kids with Autism Grow Up
(The Atlantic) – Although people with autism have always existed, the United States saw a tremendous spike in diagnoses beginning in the late 1990s, due in part to increased public awareness of the disorder and improvements in evaluation. About one … Read More
February 18, 2019
The Devastating Allure of Medical Miracles
(Wired) – Consent in hand transplants is devilishly slippery: Can a person who has lost a hand properly weigh the allure of soon regaining such a vital part of themself against the seemingly distant probabilities of suffering treatment’s possible harms? … Read More
January 17, 2019
A New Edition of Journal of Intellectual Disability Research Is Now Available
Journal of Intellectual Disability Research (vol. 62, no. 10, 2018) is available online by subscription only. Articles include: “Mobile Technology Use and Skills among Individuals with Fragile X Syndrome: Implications for Healthcare Decision Making” by M. Raspa et al. “‘More … Read More
January 11, 2019
A New Edition of Clinical Ethics Is Now Available
Clinical Ethics (vol. 13, no. 3, 2018) is available online by subscription only. Articles include: “The Ethical Concerns of Seeking Consent from Critically Ill, Mechanically Ventilated Patients for Research – A Matter of Possessing Capacity or Surrogate Insight” by Avelino … Read More
January 10, 2019
A New Edition of Journal of Medical Ethics Is Now Available
Journal of Medical Ethics (vol. 44, no. 9, 2018) is available online by subscription only. Articles include: “Consenting to Invasive Contraceptives: An Ethical Analysis of Adolescent Decision-Making Authority for Long-Acting Reversible Contraception” by Rosemary Talbot Behmer Hansen and Kavita Shah Arora … Read More
January 9, 2019
Male Workers Face DNA Testing After Comatose Woman Had Baby
(ABC News) – Police have served a search warrant to get DNA from all male employees at a long-term care facility in Phoenix where a patient in a vegetative state for years gave birth, triggering reviews by state agencies and … Read More
January 8, 2019
A New Edition of JAMA Is Now Available
JAMA (vol. 320, no. 12, 2018) is available online by subscription only. Articles include: “Reducing Maternal Mortality in the United States” by Michael C. Lu “Letting Her Be in Charge” by Lynn E. Fiellin “The Path to the First FDA-Approved Cannabis-Derived Treatment … Read More
January 7, 2019
In a Vegetative State for Years, She Gave Birth. Now Families Wonder If There Are Other Victims
(The Washington Post) – On Dec. 29, with help from one of the facility’s nurses, the patient gave birth to a healthy baby boy, KPHO reported. The birth — and the sexual assault of a vulnerable individual that must have … Read More
