December 22, 2017
Journal of Applied Research in Intellectual Disabilities (vol. 30, no. 6, 2017) is available online by subscription only. Articles include: “Intellectual Disabilities and Decision Making at End of Life: A Literature Review” by Abbie Kirkendall, Kristen Linton, and Saritha Farris … Read More
December 20, 2017
(Kaiser Health News) – Complaints about allegedly improper evictions and discharges from nursing homes are on the rise in California, Illinois and other states, according to government data. These concerns are echoed in lawsuits and by ombudsmen and consumer advocates. … Read More
December 15, 2017
Journal of Moral Theology (vol. 6, special issue 2, 2017) is available online by subscription only. Articles include: “On ‘And Vulnerable’: Catholic Social Thought and the Social Challenges of Cognitive Disability” by Matthew Gaudet “The Goodness and Beauty of Out … Read More
December 14, 2017
(New York Times) – As the first babies born with brain damage from the Zika epidemic become 2-year-olds, the most severely affected are falling further behind in their development and will require a lifetime of care, according to a study … Read More
December 14, 2017
(NPR) – When a pregnant woman finds out that she’s likely to give birth to a baby with Down syndrome, she’s often given the option to terminate the pregnancy. But families affected by the genetic disorder, which causes developmental delays, … Read More
December 8, 2017
Nursing Philosophy (vol. 18, no. 4, 2017) is available online by subscription only. Articles include: “Can Nursing Epistemology Embrace p-Values?” by Christine H. K. Ou, Wendy A. Hall, and Sally E. Thorne “Person-Centred Care Dialectics—Inquired in the Context of Palliative Care” … Read More
December 6, 2017
(New York Times) – I have been a wheelchair user since early childhood, when I sustained a spinal cord injury in a farming accident. I am now a practicing physician in the field of rehabilitation and sports medicine. In my … Read More
December 1, 2017
Medicine, Health Care and Philosophy (vol. 20, no. 1, 2017) is available online by subscription only. Articles include: “Bioenhancement of Morality” by Bert Gordijn and Henk ten Have “Compulsory Administration of Oxytocin Does Not Result in Genuine Moral Enhancement” by Vojin … Read More
November 29, 2017
(Fox News) – In 1972, America was finally getting out of Vietnam. Richard Nixon became the first American president to visit China, and a news story stunned the nation. Inside the idyllic looking Willowbrook School on New York’s Staten Island, … Read More
November 8, 2017
(Nature) – It might take years or even decades until BCI and other neurotechnologies are part of our daily lives. But technological developments mean that we are on a path to a world in which it will be possible to … Read More
October 31, 2017
(BBC) – British athletes were threatened with not being selected if they spoke out about classification concerns in Paralympic sports, MPs have been told. “It’s somewhere between bullying and control,” said 11-time Paralympic champion Baroness Tanni Grey-Thompson. She was speaking … Read More
October 30, 2017
(The Guardian) – Earlier this year I went to an event in Austin, Texas, billed as a sneak preview of the evolution of our species. The #Bdyhax Conference, which took place in a downtown exhibition complex, promised a front-row insight … Read More
October 27, 2017
(The Guardian) – A woman with a severe learning disability who gave birth after a suspected rape should be fitted with a contraceptive patch against the wishes of her mother, the high court has ruled. The 21-year-old woman, known in … Read More
October 24, 2017
(STAT News) – Jessie and Samantha’s story speaks to an emerging ethical morass in the field of reproductive medicine: what to do when patients seeking to get pregnant select embryos with DNA that could lead to a disease or disability. … Read More
September 29, 2017
HEC Forum (vol. 29, no. 2, 2017) is available online by subscription only. Articles include: “A Grassroots Community Dialogue on the Ethics of the Care of People with Autism and Their Families: The Stony Brook Guidelines” by Stephen G. Post et al. “A … Read More
September 25, 2017
(ABC News) – Kuhns went to her home in rural central Ohio that day and cried for hours. But Oliver, her 2-year-old son with Down syndrome, ultimately has led “a pretty normal life.” That’s why Kuhns is fighting for an … Read More
September 22, 2017
(Vox) – I was born nearly 55 years ago with spinal muscular atrophy, a congenital, progressive neuromuscular weakness akin to muscular dystrophy. Without extensive daily interventions — hands-on (and expensive) assistance with bathing, dressing, toileting, and feeding, as well as … Read More
September 12, 2017
(UPI) – Research shows individuals with developmental disabilities experience significant disparities in healthcare quality, access, status and unmet needs. Researchers at The Ohio State University conducted a telephone survey of 42,876 adults and 10,122 proxy interviews for children under 18 … Read More
September 7, 2017
(Reuters) – The couple had known from the 24th week of the pregnancy that their child would be born with Arnold Chiari Type II syndrome – a structural defect in the brain. Since abortions in India are allowed only up … Read More
September 1, 2017
(The Washington Post) – Needing a lifesaving transplant is truly awful for any child and family. For children with a disability, the challenges are even more immense. Lief has autism and is a non-speaking person who types to communicate. He … Read More
August 29, 2017
(Science Daily) – In 2010, there was an estimated total of 1,386 annual births with Down syndrome across the nine states, corresponding to 1 in 824 live births. Live birth prevalence ranged from 1 in 729 in Florida to 1 … Read More
August 21, 2017
(Quartz) – Here’s the interesting thing: Down syndrome, or Trisomy 21 as it is also called, is actually one of the less severe chromosomal conditions. Unlike many other trisomies (genetic conditions in which a person has three copies of a … Read More
August 16, 2017
(The Guardian) – When a child suffers a long-term or chronic illness, one of the greatest psychological problems they confront is isolation from their peers and schoolmates. It’s possible to keep up with schoolwork, but not the social interplay and … Read More
August 16, 2017
(Nature) – Early experiments are beginning to show how genome-editing technologies such as CRISPR might one day fix disease-causing mutations before embryos are implanted. But refining the techniques and getting regulatory approval will take years. PGD has already helped thousands … Read More
August 15, 2017
(CBS News) – With the rise of prenatal screening tests across Europe and the United States, the number of babies born with Down syndrome has significantly decreased, but few countries have come as close to eradicating Down syndrome births as … Read More
