Should ‘Broken’ Genes Be Fixed? My Daughter Changed the Way I Think about That Question

February 24, 2020

(STAT News) – These conversations have great weight in our family because Palmer and I believe that had we learned our unborn child had oculocutaneous albinism, Ruthie would not be here today. She would have been filtered out as an embryo or terminated. In the future, it’s possible that children like her could be edited or “fixed.” And here, to me, is the crux of the matter: What is the role of technology in medicine? Before Ruthie, I gave little thought to the distinction between choosing to intervene because we can and choosing to intervene because we should.