Forum on blood spots, genetic research and privacy to be held in Bethesda Sept. 23, 2009

August 25, 2009

Newborn Screening is an invaluable public health program that saves lives and helps to prevent the development of serious disease and debilitation. But how can privacy and autonomy best be maintained regarding the residual dried blood spots which are collected from newborns shortly after birth? To address this and other compelling issues surrounding the use of newborn screening blood spots, experts from across the US from a number of renowned institutions including the Mayo Clinic, the March of Dimes, the American College of Medical Genetics and the Genetic Alliance will host a public/professional forum and Internet webinar on “Blood Spots, Genetic Research and Privacy.” (PhysOrg)