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Recommended Reading

May 4, 2011

New Issue of The American Journal of Bioethics is Now Available

The American Journal of Bioethics (Volume 11, Issue 5, April 2011) is now available by subscription only.

Articles include:

  • “Beyond the IRB: Local Service Versus Global Oversight” by Molly Havard and David Magnus, 1 – 2.
  • “Mobile Contact Tracing and Counseling for STI’s: There’s Not an App for That” by Summer McGee, 3 – 4.
  • “Dealing With the Long-Term Social Implications of Research” by Alan Fleischman, Carol Levine, Lisa Eckenwiler, Christine Grady, Dale E. Hammerschmidt, and Jeremy Sugarman,5 – 9.
  • “Power and Representation of the Public’s Values in a Social Implications of Research Commission” by John H. Evans, 10 – 11.
  • “Challenges in a Divided Assessment of the Social Benefits and Risks of Research” by David Wasserman, 12 – 13.
  • “The Role of Controversial Research in the IRB’s Risk/Benefit Analysis” John Lunstroth, 14 – 16.
  • “Targeting Funding Sources: A Strategic Mechanism of Research Regulation” by Benjamin D. Schanker and Kchersti A. Ulvestad, 17 – 18.
  • “The Need for Topically Focused Efforts to Deal with the Long-Term Social Implications of Research” by Frazier Benya, 19 – 20.
  • “Designing a Disconnect?” by  Gladys B. White, 20 – 22.
  • “IRBs and The Long-Term Social Implications of Research” by Inmaculada de Melo-Martín, 22 – 23.
  • “Social Contexts Influence Ethical Considerations of Research” by Judith B. Gordon, Robert J. Levine, Carolyn M. Mazure, Philip E. Rubin, Barry R. Schaller, John L. Young, 24 – 30.
  • “Social Considerations in Research: Consider Them but Don’t Use Them” by Dov Greenbaum and Mark Gerstein, 31 – 32.
  • “Social Contexts, Social Media, and Human Subjects Research” by Mary Foulkes, 35 – 36.
  • “Research Impacting Social Contexts: The Moral Import of Community-Based Participatory Research” by Ric Munoz and Mark D. Fox, 37 – 38.
  • “An Ethically Justified Framework for Clinical Investigation to Benefit Pregnant and Fetal Patients” by Frank A. Chervenak and Laurence B. McCullough, 39 – 49.
  • “Reframing the Framework: Toward Fair Inclusion of Pregnant Women as Participants in Research” by Anne Drapkin Lyerly, Margaret Olivia Little and Ruth R. Faden, 50 – 52.
  • “Moral Status and the Fetus: Continuation of a Dialogue” by Carson Strong, 52 – 54.
  • “Emergent Obligations to the Former Fetal Research Subject” by Kenneth Kipnis,54 – 56.
  • “Research in Pregnancy: Back to First Principles” by David I. Shalowitz and Jeffrey L. Ecker,56 – 57.
  • “Community, Constituency, and Morbidity: Applying Chervenak and McCullough’s Criteria” by Geetha Shivakumar, Stephen Inrig and John Z. Sadler, 57 – 60.
  • “The Common Rule, Pregnant Women, and Research: No Need to “Rescue” That Which Should Be Revised” by Chris Kaposy and Françoise Baylis, 60 – 62.
  • “Who Is A Patient and Why Does It Matter?” by Ana S. Iltis, 62 – 64.
  • “Unacceptable Risk in Pregnancy: Whose Choice and Responsibility?” by Constance Perry, 64 – 65.
  • “The Two-Patient Framework for Research During Pregnancy: A Critique and a Better Way Forward” by Joan Liaschenko, Debra DeBruin and Mary Faith Marshall, 66 – 68.
  • “Response to Open Peer Commentaries on “Social Contexts Influence Ethical Considerations of Research” by Robert J. Levine, Judith B. Gordon, Carolyn M. Mazure, Philip E. Rubin, Barry R. Schaller, and John L. Young, W1 – 2
  • “The Fetus as a Patient and the Ethics of Human Subjects Research: Response to Commentaries on “An Ethically Justified Framework for Clinical Investigation to Benefit Pregnant and Fetal Patients” by Laurence B. McCullough and Frank A. Chervenak, W3 – 7

Event: The Globalization of Health Care: Legal and Ethical Challenges

A conference, The Globalization of Health Care: Legal and Ethical Challenges on May 20-21 is sponsored by  The PetrieFlom Center for Health Law Policy, Biotechnology and Bioethics and the Harvard University Program on Ethics and Health.  It will take place in Cambridge, MA at the law school. The program will address issues such as: Medical Tourism for Services Legal or Illegal in the Patient’s Home Country (e.g., Fertility Tourism, Death Tourism, Organ Tourism); Medical Migration (Brain Drain); Medical Repatriation; Parallel Drug Pricing, and Arbitrage in Pharmaceuticals across Borders; Research Tourism and MultiRegional Clinical Trials; Policing Transnational Infectious Diseases and International Vaccine Development; Moral Duties to Provide Health Care Across Nations.

New Issue of Medicine, Health Care and Philosophy is Now Available

Journal of Medicine, Health Care and Philosophy (Vol. 14, Issue 2, April 2011) is now available by subscription only.

Articles include:

  • “Avoiding bias in medical ethical decision-making. Lessons to be learnt from psychology research” by Heidi Albisser Schleger, Nicole R. Oehninger and Stella Reiter-Thei.
  • “Re-embodiment: incorporation through embodied learning of wheelchair skills” by Øyvind F. Standal
  • “Professional values: introduction to the theme” by David Badcott
  • “Professional values, aesthetic values, and the ends of trade” by Andrew Edgar
  • “Professional values and nursing” by Derek Sellman
  • “Values in complementary and alternative medicine” by Stephen Tyreman

April 29, 2011

New Issue of NanoEthics is Now Available

NanoEthics (Volume 5, Issue 1, April 2011) is now available by subscription only.

Articles include:

  • “Nano-Technology, Ethics, and Risk” by Wade L. Robison, 1-13.
  • “Trust in Nanotechnology? On Trust as Analytical Tool in Social Research on Emerging Technologies” by Trond Grønli Åm, 15-28.
  • “The Renaissance of Francis Bacon:On Bacon’s Account of Recent Nano-Technoscience” by Jan Cornelius Schmidt, 29-41.
  • “Animal Disenhancement and the Non-Identity Problem: A Response to Thompson” by Clare Palmer, 43-48.
  • “Trustworthy Nanotechnology: Risk, Engagement and Responsibility” by Bjørn K. Myskja, 49-56.
  • “Mapping Uncertainties in the Upstream: The Case of PLGA Nanoparticles in Salmon Vaccines” by Kåre Nolde Nielsen, Børge Nilsen Fredriksen and Anne Ingeborg Myhr, 57-61.
  • “Precaution or Integrated Responsibility Approach to Nanovaccines in Fish Farming? A Critical Appraisal of the UNESCO Precautionary Principle” by Anne Ingeborg Myhr and Bjørn K. Myskja, 73-86.
  • “Centre and Periphery of Nano—A Norwegian Context” by Kåre Nolde Nielsen, Trond Grønli Åm and Rune Nydal, 87-98.
  • “Conversations About Responsible Nanoresearch” by Kamilla Lein Kjølberg and Roger Strand,99-113.
  • “Trust as Glue in Nanotechnology Governance Networks” by Heidrun Åm, 115-128.

April 25, 2011

New Issue of Bioethics is Now Available

Bioethics (Volume 25, Issue 4, April 2011) is now available by subscription only.

Articles include:
“Enhancements: Improvements for Whom?” by Ruth Chadwick,ii.
“Will Biomedical Enhancements Undermine Solidarity, Responsibility, Equality and Autonomy?” by Ori Lev, 177–184.
“Racist  Appearance Standards and the Enhancements that Love Them: Norman Daniels and Skin- Lightening Cosmetics” by Matt Lamkin, 185-201.
“The Virtue Ethics Approach to Bioethics” by Stephen Holland, 192–201.
“Balancing Liberation and Protection: A Moderate Approach to Adolescent Health Care Decision-Making” by Andy Piker, 202-208.
“Exploitation in Payments to Research Subjects” by Trisha Phillips, 209-219.
“Current Functions of Italian Ethics Committees: A Cross-Sectional Study” by Caterina Caminiti, Francesca Diodati, Arianna Gatti, Saverio Santachiara, and Sandro Spinsanti, 220-227.
“The Significance of Personal Identity to Abortion” by Chris Heathwood, 230-232.

New Issue of The American Journal of Bioethics is Now Available

The American Journal of Bioethics (Volume 11, Issue 4, April 2011) is now available by subscription only.

Articles include:

  • “The Research Subject as Identified Problem” by Paul Root Wolpe, 1-2.
  • “Assessing the Remedy: The Case for Contracts in Clinical Trials” Sarah J. L. Edwards, 3 – 12.
  • “Contractual Duties in Research, Surrogacy, and Stem Cell Donation” by John A. Robertson, 13 – 14.
  • “Reevaluating the Right to Withdraw From Research Without Penalty” by G. Owen Schaefer and Alan Wertheimer, 14 – 16.
  • “The Case Against Contract: Participant and Investigator Duty in Clinical Trials” by Kenneth De Ville , 16 – 18.
  • “Dropout by Design: Advance Planning for Research Participant Noncompliance” by Toby Schonfeld and James Anderson, 18 – 20.
  • “Known Versus Unknown Threats to Internal Validity: A Response to Edwards” by Stephen Rice and David Trafimow, 20 – 21.
  • “‘Through a Glass Darkly’: Researcher Ethnocentrism and the Demonization of Research Participants” by John A. Lynch, 22 – 23.
  • “Can Contracts Enhance Participant Autonomy in Clinical Trials?” by Diana Buccafurni, 24 – 25.
  • “The Perspective of an IRB Member” by Stephen S. Hanson, 25 – 27.
  • “The Subject-Researcher Relationship: In Defense of Contracting Around Default Rules” by Michelle N. Meyer, 27 – 30.
  • “An Ethical Evaluation of the 2006 Centers for Disease Control and Prevention Recommendations for HIV Testing in Health Care Settings” by M. Teresa Celada, Roland C. Merchant, Michael J. Waxman and Angela M. Sherwin, 31 – 40.
  • “The Re-Queering of HIV Testing Practices and the Reinforcement of Stigma” by Lance Wahlert and Autumn Fiester, 41 – 43.
  • “When Informed Consent Meets the Everyday” by William Smith, 43 – 45.
  • “Routine Opt-Out HIV Testing in Dental Health Care—Its Implementation and the Advancement of Public Health” by Anthony Vernillo, 46 – 48.
  • “Public Health Ethics and the Justification of HIV Screening” by Angus Dawson, 48 – 49.
  • “Response to Open Peer Commentaries on “Assessing the Remedy: The Case for Contracts in Clinical Trials” by Sarah J. L. Edwards,W1 – 3.

April 22, 2011

New Issue of Journal of Internal Medicine is Now Available

The Journal of Internal Medicine (Volume 269, Issue 4, April 2011) is now available by subscription only.

Articles include:

  • “Is medical ethics doing its job?” M. G. Hansson and R. Chadwick, 366–369.
  • “Interests, rights and standards of care in the context of globalized medicine” by H. Haker,370–374.
  • “How to avoid a dichotomy between autonomy and beneficence: from liberalism to communitarianism and beyond” by M. Sutrop, 375–379.
  • “Autonomy revisited – a response to H. Haker” by Alastair V. Campbell,380–382.
  • “Why our conceptions of research and practice may not serve the best interest of patients and subjects” by T. L. Beauchamp, 383–387.
  • ” The distinction between research and practice – a response to T. Beauchamp” by M. F. Verweij,388–391.
  • “Are the research ethics committees working in the best interests of participants in an increasingly globalized research environment?” D. Chalmers,392–395.
  • “A method to estimate the cost in lives of ethics board review of biomedical research” by S. N. Whitney and C. E. Schneider,396–402.
  • “Systems, rules and the costs of being ethical – a response to D. Chalmers and to S. Whitney and C. Schneider” by S. Holm, 403–406.

New Issue of Journal of Medical Ethics is Now Available

Journal of Medical Ethics (Volume 37, No. 4, April 2011) is now available by subscription only.
Articles include:

  • “The concise argument:Highlights from this issue” by Søren Holm, 193.
  • “A novel method to enhance informed consent: a prospective and randomised trial of form-based versus electronic assisted informed consent in paediatric endoscopy” by Joel A Friedlander, Greg S Loeben, Patricia K Finnegan, Anita E Puma, Xuemei Zhang, Edwin F de Zoeten, David A Piccoli, Petar Mamula, 194-200.
  • “Should medicine assist a teenager to achieve a pregnancy?” by Marwan Habiba, 201-204.
  • “Prevalence of depression in granted and refused requests for euthanasia and assisted suicide: a systematic review” by Ilana Levene, Michael Parker, 205-211.
  • “Choice is not the issue. The misrepresentation of healthcare in bioethical discourseThis article has been Unlocked” by Kari Milch Agledahl, Reidun Førde, Åge Wifstad, 212- 215.
  • “Is there a right not to know one’s sex? The ethics of ‘gender verification’ in women’s sports competition” by Claudia Wiesemann, 216-220.
  • “HIV priorities and health distributions in a rural region in Tanzania: a qualitative study” by Kjell Arne Johansson, Ingrid Miljeteig, Hamisi Kigwangalla, Ole Frithjof Norheim, 221-226.
  • “Changing attitudes towards euthanasia among medical students in Austria” by Willibald J Stronegger, Christin Schmölzer, Éva Rásky, Wolfgang Freidl,227-229.
  • “Healthcare scandals in the NHS: crime and punishment” by Amel Alghrani, Margaret Brazier, Anne-Maree Farrell, Danielle Griffiths, Neil Allen, 230-232.
  • “Ethical issues related to the access to orphan drugs in Brazil: the case of mucopolysaccharidosis type I” by Raquel Boy, Ida V D Schwartz, Bárbara C Krug, Luiz C Santana-da-Silva, Carlos E Steiner, Angelina X Acosta, Erlane M Ribeiro, Marcial F Galera, Paulo G C Leivas, Marlene Braz, 233-239.
  • “Ethically complex decisions in the neonatal intensive care unit: impact of the new French legislation on attitudes and practices of physicians and nurses” by Micheline Garel, Laurence Caeymaex, François Goffinet, Marina Cuttini, Monique Kaminski, 240-243.
  • “The challenge of defining standards of prevention in HIV prevention trials” by Sean Philpott, Lori Heise, Elizabeth McGrory, Lynn Paxton, Catherine Hankins, the participants in the 2009 GCM/CDC/UNAIDS Consultation on Standards of Prevention in HIV Prevention Trials, 224-228.
  • “Retractions in the scientific literature: is the incidence of research fraud increasing?” by R Grant Steen,
  • “General practitioners’ conflicts of interest, the paramountcy principle and safeguarding children: a psychodynamic contribution” by Adrian Sutton, 249-253.
  • “Health and human rights: an area of neglect in the core curriculum?” Joseph Robert Fitchett, Elena Ferran, Katherine Footer, Natasha Ahmed,258-260.

April 21, 2011

New Issue of Developing World Bioethics is Now Available

Journal of Developing World Bioethics (Volume 11, Issue 1, April 2011) is now available by subscription only.

Articles include:

  • “The Deadly Ideas of Neoliberalism: How the IMF undermined Public Health and the Fight Against AIDS By Rick Rowden” by  SOLOMON R. BENATAR, 55–56.

New Issue of Nursing Philosophy is Now Available

Nursing Philosophy (Volume 12, Issue 2, April 2011) is now available by subscription only.

Articles include:

  • “Integrity and the moral complexity of professional practice” by Andrew Edgar and Stephen Pattison, 94–106.
  • “Integrity: is it still relevant to modern healthcare?” by Stephen Tyreman, 107–118.
  • “Mature care and the virtue of integrity” by Vigdis Ekeberg, 128–138.

New Issue of Journal of Bioethical Inquiry is Now Available

Journal of Bioethical Inquiry (Volume 8, Issue 1, March 2011) is now available by subscription only.

Articles include:

  • “Editorial” by Kate Cregan, 1.
  • “Issues and Challenges in Research on the Ethics of Medical Tourism: Reflections from a Conference” by Jeremy Snyder, Valorie Crooks and Leigh Turner, 3-6.
  • “Recent Developments” by Cameron Stewart, Bill Madden, Tina Cockburn and John Coggon, 7-12.
  • “Symposium: Neuroethics and Mental Health—Old Wine in New Bottles or a Legitimate New Field of Bioethical Inquiry” Michael Robertson, 13-14.
  • “‘This is Why you’ve Been Suffering’: Reflections of Providers on Neuroimaging in Mental Health Care” by Emily Borgelt, Daniel Z. Buchman and Judy Illes, 15-25.
  • “Psychiatric Molecular Genetics and the Ethics of Social Promises” by John Z. Sadler, 27-34.
  • “The Gold-Plated Leucotomy Standard and Deep Brain Stimulation” by Grant Gillett, 35-44.
  • “Criminal Law as It Pertains to Patients Suffering from Psychiatric Diseases by Maxwell R. Bennett and Peter M. S. Hacker, 45-58.
  • “A New Challenge for Research Ethics: Incidental Findings in Neuroimaging” by Bert Heinrichs, 59-65.
  • “What Constitutes Adequate Public Consultation? Xenotransplantation Proceeds in Australia” by Peta S. Cook, 67-70.
  • “Art and Bioethics: Shifts in Understanding Across Genres” Paul Ulhas Macneill and Bronaċ Ferran, 71-85.
  • “One Flu Over The Cuckoo’s Nest: Comparing Legislated Coercive Treatment for Mental Illness with that for Other Illness” by Christopher James Ryan, 87-93.
  • “Petryna, Adriana. 2009. When experiments travel: Clinical trials and the global search for human subjects” by Kevin A. Schulman, 95-96.
  • “Republication: In that Case” by Malcolm Parker,97-98.
  • “Response” by Robert King,99.
  • “Response” by Tony Wild,101-102.
  • “Response” by Christopher James Ryan, 103-104.
  • “In That Case” by Bill Lukin, 105-106.
  • “Erratum: “This is Why you’ve Been Suffering”: Reflections of Providers on Neuroimaging in Mental Health Care” by Emily Borgelt, Daniel Z. Buchman and Judy Illes, 107.

New Issue of Journal of Medical Ethics is Now Available

Journal of Medical Ethics (Volume 37, Issue 5, May 2011) is now available by subscription only.

Articles include:

  • “The Concise Argument” by Søren Holm, 261.
  • “Sparrows, Hedgehogs and Castrati: Reflections on Gender and Enhancement” by John Harris, 262-266.
  • “Should the Practice of Medicine Be A Deontological or Utilitarian Enterprise?” by Gerard Garbutt and Peter Davies, 267-700.
  • “Disclosure of Individual Research Results in Clinico-Genomic Trials: Challenges, Classification and Criteria for Decision-Making” by Regine Kollek and Imme Petersen, 271-275.
  • “Harris, Harmed States, and Sexed Bodies” by Robert Sparrow, 276-279.
  • “Parental Procreative Obligation and the Categorisation of Disease: the Case of Cystic Fibrosis” by Gabriel T Bosslet, 280-284.
  • “Advance Directives and Older People: Ethical Challenges in the Promotion of Advance Directives in New Zealand” by Phillipa J Malpas,285-289.
  • “Brain Death Revisited: It Is Not ‘Complete Death’ According to Islamic Sources” by Ahmet Bedir and Şahin Aksoy, 290-294.
  • “Veterinary Surgeons’ Attitudes Towards Physician-Assisted Suicide: an Empirical Study of Swedish Experts on Euthanasia” by Henrik Lerner,Anna Lindblad,Bo Algers,and Niels Lynöe, 295-298.
  • “Rethinking Scientific Responsibility” by Annika Forssén,Eivind Meland,Irene Hetlevik, and Roger Strand, 299-302.
  • “The Ideal Application of Surveillance Technology in Residential Care for People with Dementia” by Alistair R Niemeijer,Brenda J M Frederiks,Marja F I A Depla,Johan Legemaate,Jan A Eefsting,Cees M P M Hertogh, 303-310.
  • “How is Informed Consent Related to Emotions and Empathy? An Exploratory Neuroethical Investigation” by Alexander Supady,Antonie Voelkel,Joachim Witzel, Udo Gubka, and Georg Northoff, 311-317.
  • “The Problems with Utilitarian Conceptions of Personhood in the Abortion Debate” by Daniel R A Cox, 318-320.
  • “Ethics Briefings” by Martin Davies,Sophie Brannan, Eleanor Chrispin,Veronica English, Rebecca Mussell, Julian Sheather, and Ann Sommerville, 321-323.

April 19, 2011

New Issue of The American Journal of Bioethics is Now Available

The American Journal of Bioethics (Volume 11, Issue 3, 2011) is now available online.

Articles include:

  • “Sexless Reproduction: A Status Symbol” by Molly Harvard and David Magnus, 1.
  • “The Many Moral Responsibilities of Independent Data-Monitoring Committees” by Alain Braillon, 16 – 17.
  • “An Obscure Rider Obstructing Science: The Conflation of Parthenotes with Embryos in the Dickey-Wicker Amendment” by Sarah Rodriguez, Lisa Campo-Engelstein, Candace Tingen, and  Teresa Woodruff, 20 – 28.
  • “What It Is: The Biology and Moral Status of Parthenotes and Embryos” by William Paul Kabasenche, 29 – 30.
  • “The Distinction Between Parthenotes and Embryos Is Not Easily Made” by Philip H. Schwartz, 31 – 32.
  • “Why Public Policy on Embryo Research Should Not Be Based on Religion” by Carson Strong,33 – 35.
  • “The Parthenotes and the Parthenon” by Russell DiSilvestro,35 – 36.
  • “Symbolism and Sacredness of Human Parthenotes” by Zubin Master and G. K. D. Crozier,37 – 39.

New issue of Cambridge Quarterly of Healthcare Ethics is now available

New Issue of Cambridge Quarterly of Healthcare Ethics, (Volume 20, Issue 2) is now available.
Articles include:

  • “On Method and Resolution in Philosophical Bioethics” by John Coggon, 159-163.
  • “Classification and Normativity: Some Thoughts on Different Ways of Carving Up the Field of Bioethics” by Sørem Holm, 165 – 173.
  • “Vorsprung durch Technik: On Biotechnology, Bioethics, and Its Beneficiaries” by Nicky Priaulx, 174 – 184.
  • “Bays, Beaches, and Bioethical Barkings” by Jan Helge Solbakk, 185 – 190.
  • “Eugenics and the Genetic Challenge, Again: All Dressed Up and Just Everywhere to Go” by Tom Koch, 191-203.
  • “The Challenge of Nonconfrontational Ethics” by John Harris, 204-215.
  • “Confronting Rationality” by Ronald M. Green,216 – 227.
  • “Nonconfrontational Rationality or Critical Reasoning” by Vilhjálmur Árnason, 228-237.
  • “Are All Rational Moralities Equivalent?” by Darryn Gunson, 238-247.
  • “Genetic Enhancement in Sports: The Role of Reason and Private Rationalities in the Public Arena” by Silvia Camporesi and Paolo Maugeri, 248-257.
  • “Reasons, Rationalities, and Procreative Beneficence: Need Häyry Stand Politely By While Savulescu and Herissone-Kelly Disagree?” by Peter Herissone-Kelly, 258-267.
  • “Balancing Procreative Autonomy and Parental Responsibility” by Tom Buller and Stephanie Bauer, 268-276.
  • “Introduction: Access to Life-Saving Medicines and Intellectual Property Rights” by Doris Schroeder, 277-278.
  • “Access to Life-Saving Medicines and Intellectual Property Rights: An Ethical Assessment” by Doris Schroeder and Peter Singer, 279-289.
  • “Developing Medicines in Line with Global Public Health Needs: The Role of the World Health Organization” by Tikki Pang, 290-297.
  • “Does the Pharmaceutical Sector Have a Coresponsibility for the Human Right to Health?” by Doris Schroeder, 298-308.
  • “Access to Healthcare and the Pharmaceutical Sector” By Klause M. Leisinger and Karin M. Schmitt, 309-325.
  • “Collaborating with the Pharmaceutical Industry: An Aboriginal Perspective” by Jack Beetson, 326-328.
  • “Epilogue: New Drugs for Neglected Diseases” by Thomas Pogge and Aidan Hollis, 329-334.


The Bioethics Poll
Should individuals and/or institutions be allowed to patent human genes?
Yes, with some qualifications

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Which area of research should more money be invested in:
Animal-Human Hybrids
Gene Therapy
Reproductive Technology
Stem Cell Research
"Therapeutic" Cloning
None of the above

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