As His Wife’s Caregiver, a Doctor Discovers What’s Missing at Health Care’s Core

December 5, 2019

(Kaiser Health News) – Although Kleinman’s specialty is studying how patients experience illness, he wasn’t prepared for the roller coaster of family caregiving. Each time he adapted to Joan’s changing condition, another setback would occur, setting off new crises and fueling uncertainty and stress. During 11 years of caregiving until Joan’s death in 2011, Kleinman learned that no one who goes through this emerges unchanged. He became less self-centered, more compassionate and more aware of how the health care system fails to support family caregivers ? the backbone of the nation’s long-term care system.