The Broken Promise That Undermines Human Genome Research
February 10, 2021
(Nature) – It was a historic moment, says Haussler. Before the HGP launched in the early 1990s, “there had not been a serious discussion about data sharing in biomedical research”, Haussler says. “The standard was that a successful investigator held onto their own data as long as they could.” That standard clearly wouldn’t work for such a large and collaborative effort. If countries or scientists hoarded the data they were producing, it would derail the project. So in 1996, the HGP researchers got together to lay out what became known as the Bermuda Principles, with all parties agreeing to make the human genome sequences available in public databases, ideally within 24 hours — no delays, no exceptions.