November 27, 2024

From exploitation to empowerment: how researchers can protect Indigenous peoples’ rights to own and control their data

(Nature) – By changing how contracts are done, institutions can move away from exploitative research practices. Historically, the people and institutions that carry out research related to Indigenous peoples have assumed that they own those data — they can share … Read More



 
 

November 7, 2024

Will South Africa become first country to accept controversial form of human genome editing?

(Nature) – Scientists raise the alarm following updated research ethics guidelines on heritable human genome editing. Researchers have voiced concerns after South Africa updated its health-research ethics guidelines to include a new section on heritable (or germline) human genome editing. … Read More



 
 

October 31, 2024

Key global bioethics guidelines get ‘dramatic’ update

(Science) – Revised Declaration of Helsinki stresses need for equity, protection of vulnerable groups, and research integrity The Declaration of Helsinki—a foundational text that outlines international ethical principles for medical research—has undergone one of the most extensive revisions since it … Read More